Our hearts go out to actress Marla Sokoloff.
According to her blog on PEOPLE, the actress’ 5-month-old daughter Elliotte – who was born with a rare abnormality of lung development called congenital cystic adenomatoid malformation (CCAM) – recently underwent lung surgery in which the surgeon successfully removed Elliotte’s entire upper left lobe.
“CCAM is a cystic area within the lung that stems from an abnormal embryogenesis,” Marla writes. “No one seems to know why this malformation occurs, and only about 1 in 30,000 babies are afflicted with this condition. If not treated, CCAM can develop into a serious infection and it can even turn into lung cancer later in life.”
The devastating realization that something was wrong surfaced when Marla and her husband Alec went in for a routine ultrasound during her second trimester.
‘I know this news may come as a shock, as I have never mentioned any of this before — but it’s no shock to my family and me,” she recalls. “Remember that second trimester scare I had? Well … the blood work was in fact a false positive, and the amino did come back showing a completely perfect little baby girl … but when they performed the level 2 ultrasound, they saw some very worrisome lung tissue.”
And although the couple met with a pediatric surgeon “who explained to that she would need surgery within the first six months of her life — if not sooner — to correct her lung,” little Elliotte was born “with a perfect Apgar score and didn’t require any extra oxygen.”
Two weeks after Elliotte’s lung surgery – and one scary yet uneventful trip to the hospital – it seems Elliotte is one the mend.
“So now we’re out of the woods … but I guess as parents we are never really out of the woods, per se,” Marla comments. “I will always worry about my little girl, but now I can finally check this extra large super-sized worry off of my list.”
“For any parent that reads this that has had a child with a health crisis or that has spent any time in the hospital with your little one, my heart sincerely goes out to you,” she adds. “This has far and away been the hardest thing I have ever gone through and to be completely honest — I’m still recovering.”
“It has changed every part of my being and I’m not sure I will ever be the same again. I will forever look at my daughter and my husband differently. We went through the trenches together and our little family unit is now stronger than ever. I feel as if we can get through anything as long as we have each other.”